Thankful to My Three Donors

By Aubrey Turner, three-time kidney transplant recipient

I’ve never known what it’s like to be truly healthy. When I was two, just a toddler, I was diagnosed with Focal Segmental Glomerulo Sclerosis, a rare disease which attacks the kidneys. When I was two, just a toddler, my parents were told I would eventually need a kidney transplant to survive.

My mom, not wanting her baby to struggle, donated one of her kidneys when I was four. Through the next eight years her gift allowed me to go to school, have friends and to be a normal kid. Unluckily, a series of health crisis when I was 12 caused my gifted kidney to fail. I vaguely remember this time in my life, but I do credit the power of prayer with helping to get me through.

Due to my kidney failing, I found myself again in need of a transplant. This time, my dad stepped up! My transplant took place in the summer of 1998, immediately following me competing in the Transplant Games of America. His gift enabled me to go through middle and high school, to be a student, do activities and spend time with my friends.

I competed just days before my second transplant.

Then, on Mother’s Day 2000 my parents received a call they never wanted to hear – I was diagnosed with skin cancer. It was staged severe enough that I had to undergo surgery and the treatment plan placed me at risk for losing my “new”

kidney.

The skin cancer treatment went on all through my eighth grade year. Four years later, as a senior in high school, my kidney finally failed from the combination of chemo and radiation. Graduation day came and I’m thankful I was able to walk and experience that milestone, but at the same time it was the most miserable moment in my life.  At this point I had very little kidney function and I was beyond swollen. Immediately after graduation we went to Nationwide Children’s Hospital to begin dialysis.

Since I was out of parents to be my living donors, and I was an only child, I had to do what hundreds of thousands of others do, join the national transplant waiting list for a new kidney while receiving dialysis.

Two days after Aubrey’s third transplant

My wait began in 2004 and lasted until 2016. 12 years. 12 years of waiting. 12 years of dialysis. 12 years of health issues. And 12 years of staying positive, knowing a hero would save me.

And a hero did, on July 13, 2016, the day before I turned 31. When my phone rang at 4:00 in the morning, I KNEW it was my transplant coordinator. I was hesitantly excited as I heard the words, “We found a match for you.”

Three hours later I was being prepped for surgery – my time had come!  Waking up from my transplant was an adjustment – I hadn’t had the urge to urinate in 12 years and it was an odd sensation!

Honoring her donor at the Lifeline of Ohio Donor Memorial

Reflecting back on how my life was after receiving my gift, I remember the amazing feeling of not having to do dialysis – I just couldn’t believe I was lucky enough to have received a transplant! Without my donor, dialysis would still rule my life – now the freedom of health and life is my new pathway.  I have the ability to work, be with my family for holidays and spend time with those I care about.

I am so incredibly thankful for this gift. I’ve written my donor family, but haven’t yet heard back. I would love to meet them in person and truly express my gratitude.

Just think, YOU have the power to save someone, like my donor did for me. Register today to save a life – www.lifelineofohio.org.

 

Summer 2018 CEO Update

Lifeline of Ohio has been busy serving our communities in 2018! As we gear up for a productive summer, we wanted to share a few initiatives with you.

First, in conjunction with 10TV, we produced a 30-minute special focusing on the Ripple Effect and how the choice of one can have a vast impact on so many. We encourage you to watch this piece and share it with your family and friends. Have a conversation about donation. It can save lives.

Secondly, summer is finally here which means it’s Dash for Donation time! Mark your calendars and join us on Saturday, July 14 at Genoa Park in Columbus for the 5K and family fun walk to raise awareness for organ, eye and tissue donation. The Dash is always a great time to meet others in the community who are connected to donation.

While you’re out enjoying the summer season, I invite you to visit our Donor Memorial at 770 Kinnear Road in Columbus. The Memorial honors the heroes of donation and the ripple effect they’ve had on their recipients, family, community and world. The Memorial is especially peaceful and welcoming this time of year and we would love to see you. If you can’t make it in person, please visit our Donor Memorial website for a virtual experience.

We look forward to the rest of 2018 and helping to save and heal lives through organ, eye and tissue donation. It takes compassionate donors, their families and many talented staff to ensure the donation process happens and happens well. I would like to acknowledge every one of the Lifeline of Ohio staff for their talent, professionalism and dedication to serving our community!

Sincerely,

Kent Holloway

Eternally Grateful for the Gift of Life

This story was submitted by The Scotts Miracle-Gro Company and transplant recipient dad, Giovanni Sapio, finance manager at Scotts.

Jaundice in newborns is common. The yellowing of a baby’s skin and eyes occurs when there is a high level of bilirubin, a yellow pigment produced during normal breakdown of red blood cells. In most cases, jaundice goes away on its own in two to three weeks. However, for baby Gabby, the condition would not go away.

Gabby was born in spring 2009, and the first six months of her life were spent in and out of the Nationwide Children’s Hospital, undergoing numerous tests and surgeries in order to figure out why she was yellow.

She was soon diagnosed with biliary atresia, a rare, incurable disease of the liver and bile ducts that occurs in infants. The majority of all children diagnosed with biliary atresia will need a liver transplant before they are 20 years old. Gabby’s parents were scared at the prospect of their daughter needing a transplant and took a while to process this information.

Within a short time frame, Gabby became a patient at Cincinnati’s Children Hospital. They were educated on keeping Gabby healthy, counseled on what a transplant would mean for their daughter and were able to connect with other parents whose children had received transplants. These interactions gave them hope.

The next few years of Gabby’s life flew by. Finally, in November of 2013, her health declined to the point where she needed to be placed on the national transplant waiting list for a new liver.

As Gabby and her parents waited for the call, her condition remained stable throughout the first half of 2014. “A beeper was given to us, and they had our cell phone numbers,” Gio, Gabby’s dad, says. “Any day, we could get the call, and we wouldn’t know when it was going to come. Every time the phone rang, we wondered if this was the call. There was a lot of anxiety.”

The call they had been waiting for came in September 2014. The family arrived in Cincinnati and five-year old Gabby was prepped for surgery.

The transplant surgery lasted more than eleven hours. The nurses provided updates throughout the day, but Gabby’s parents were anxious. Finally, they heard the good news – the surgery was a success!

Gabby made great progress over the following days and weeks. She was able to leave the hospital a week later, but had to remain in Cincinnati for six weeks while she healed.

Since her transplant three and a half years ago, she’s grown more than six inches, has gained energy and had her wish granted to visit Hawaii with her family.

When the family was asked what they thought of Gabby’s donor, “Brave, heroic, selfless, caring, compassionate, incredible, loving, courageous and amazing” were just a few of the words they had.

Gabby was truly given the gift of life and hope. Please consider registering as an organ, eye and tissue donor today.

Champions of Donation Honored at “An Evening with the Stars”

Seventeen individuals and institutions were honored for their roles in saving lives through organ, eye and tissue donation at “An Evening with the Stars” presented by Lifeline of Ohio on Saturday, March 10, 2018.

In addition to the awards, Charity Tilleman-Dick, a two-time double-lung transplant recipient, top-selling classical recording artist and TEDx speaker, shared her incredible transplant journey with the audience. She credits both of her donors with the ability to continue singing!

Our Award Winners

Hospital of the Year – OhioHealth Riverside Methodist Hospital. This award was given to OhioHealth Riverside Methodist Hospital for demonstrating outstanding collaboration in support of organ, eye and tissue donation, their comprehensive donation policies and procedures as well as their donation recovery outcomes.

 

 

 

 

Tissue Recovery Hospital of the Year Award – Morrow County Hospital for their efforts to improve tissue recovery outcomes in their hospital.

 

 

 

Physician of the Year – Dr. Onsy Ayad, Nationwide Children’s Hospital was recognized for his commitment and leadership in regards to the organ, eye and tissue donation process.

 

 

 

 

Nurse of the Year Award – Kate Savage-Ralph, RN, Mount Carmel St. Ann’s. This award is given to an outstanding hospital nurse for their role in the donation process.

 

 

 

 

 

Administrator of the Year – Corey D. Perry of OhioHealth Corporate Office.  He was selected for his guidance and direction in promoting organ, eye and tissue donation throughout the OhioHealth system.

 

 

 

 

Liaison of the Year – Dan Vincent, Education Consultant, Genesis HealthCare System.  Mr. Vincent was chosen for his dedication and innovation in promoting organ, eye and tissue donation.

 

 

 

 

 

Chaplain of the Year Award – Rick Proper, Mount Carmel East. Given for outstanding faith outreach and support for donors and their families.

 

 

 

 

 

Community Partner of the Year Award – Columbus (OH) Alumni Chapter of Kappa Alpha Psi Fraternity, Inc. for identifying national partners to bring the Donate Life message to and for making organ, eye and tissue donation a national health initiative for Kappa Alpha Psi Fraternity, Inc. which has more than 100,000 members.

 

Infinity Award – JoAnne Viviano, The Columbus Dispatch.  Ms. Viviano received this award for her commitment to furthering public understanding about organ, eye and tissue donation.

 

 

 

 

 

Public Relations Award – Gina Mace, Media Relations Specialist – WVU Medicine – Camden Clark Medical Center. This award acknowledges the comprehensive support of a hospital public relations and marketing leader in promoting organ, eye and tissue donation.

 

 

 

 

The Service, Teamwork, Attitude, Respect (S.T.A.R.) Award is given for demonstrating exemplary service, teamwork, attitude and respect in the donation process:

Dr. Donald Pojman, Franklin County Deputy Coroner – Franklin County Coroner’s Office

 

 

 

 

 

Dr. Andrew Retzinger, ER Physician – WVU Medicine – Camden Clark Medical Center

 

 

 

 

 

 

Elysia Friend – Deaf Services Center, Inc.

 

 

 

 

 

 

Mount Carmel St. Ann’s Labor & Delivery                                                                               

 

 

 

Deann and Larry Heiing

 

 

 

 

 

 

Genesis Trauma Services – Genesis HealthCare System

 

 

 

 

Dr. Amy Schlegel, Director Perinatal Palliative Care – Nationwide Children’s Hospital

 

Workplace Partners Webpage Launched to Inspire Donation Awareness

Lifeline of Ohio invites your company, hospital or organization to join us in raising awareness for organ, eye and tissue donation. The solution to this staggering crisis is one in which everyone can play a role. By learning or sharing more about the dramatic difference one individual can make in saving and enhancing lives through organ, eye and tissue donation, lives can be saved and healed.

To make it easy for our community to request resources or access donation information, Lifeline of Ohio has launched a Workplace Partners tab on its website.  This page provides an overview of the Workplace Partnership for Life program, a list of ‘Ideas for Action,’ sample donation kits for both Ohio and West Virginia and a resource request form where groups can request further donation materials or ask for assistance for their donation awareness campaign.

Designed to streamline the request for donation materials, the webpage puts tools and ideas in the hands of those who might want to launch their campaign in a timely fashion or who seek more information to share with others.

If your company, hospital or group wants to share the importance of donation with your members or community, Lifeline of Ohio invites you to visit our website for more information or to request the materials needed to hold an awareness campaign.  Determining your group’s level of involvement in promoting donation is entirely your choice.  For further information on how you can promote donation in your organization, contact Lauren Stevens, community outreach and partnership coordinator, at lstevens@lifelineofohio.org.